Our New Year’s Miracle — Fighting for Little Leo’s Future

He came into the world on New Year’s Eve, December 31, 2024 — a perfect little boy, full of promise and light. For his parents, Leoś was more than just a baby; he was a miracle. The first months of his life were peaceful, filled with the gentle rhythm of newborn days — laughter, sleepless nights, first smiles. They believed the new year had given them the greatest gift of all.

But then, everything changed.

At the end of March, without warning, Leo suffered his first seizure. His tiny body stiffened, his lips turned pale, and his eyes glazed over. The seizure lasted

thirty terrifying minutes. His parents tried to wake him, to reach him, but he was slipping away. They rushed to the hospital — and that’s where their new life began, one lived between monitors, test results, and fear.

Doctors performed countless tests, searching for answers. The diagnosis came like a storm: drug-resistant, focal epilepsy — a cruel condition that defies standard treatment.

For most parents, epilepsy is a word they read about in medical pamphlets. For Leo’s parents, it became their world. Each seizure is a battle, each night a vigil, each day a fragile victory.

As if that weren’t enough, more bad news followed. Doctors discovered convergent strabismus and low muscle tone — problems that make it hard for Leo to focus his eyes or control his movements. During his hospital stay, he suffered several more seizures, and specialists began to suspect an even deeper cause.

Genetic testing was ordered.

The first results were inconclusive — frustratingly uncertain. So more advanced tests were performed in late May. Then came the result no parent is ever ready to hear: a

mutation in the TBC1D24 gene — a rare and devastating condition known to cause seizures, developmental delays, intellectual disability, and even deafness.

The words landed like a blow.

The future they had dreamed for their son — his first steps, his first words, his laughter — suddenly became uncertain. Every seizure now feels like time slipping away. Each one steals something Leo has worked so hard to achieve.

Already, developmental delays are visible. Leo cannot lift his head or roll onto his side. Every bit of progress he makes is fragile — a single seizure can erase it in seconds. His parents live with constant fear, but also with fierce determination. They refuse to let this disease win.

For Leo, every day counts. His body and mind need constant rehabilitation — physiotherapy, neurological therapy, and stimulation exercises to support his development and prevent regression. Specialized medical equipment and therapy tools are essential to help him grow safely and comfortably.

But hope comes at a cost.

For a young family already stretched thin by medical expenses and hospital stays, the price of ongoing rehabilitation is overwhelming. “We want to give him everything he needs,” his mother says softly, “but we can’t do it alone.”

Leo’s story is one of both heartbreak and strength — of parents who refuse to surrender, of a child who keeps fighting even when the odds seem impossible. They’ve already seen how quickly life can change, how fragile and precious every moment is.

Now, they’re asking for help — not pity, but partnership in the fight to give their little boy a chance at life. Every donation, no matter how small, means another therapy session, another tool, another opportunity for Leo to reach one more milestone.

“We still believe in miracles,” his father says. “Because he is one. We just need help to keep his miracle alive.”

Leoś is only months old, but his courage has already moved hearts. He may not be able to lift his head yet, but one day — with care, therapy, and love — he might lift his whole world.

Please, help this little fighter continue his journey.
Help him grow, move, and one day say the words his parents long to hear most — “Mama. Dada.”

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